Portal de Lorca
www.portaldelorca.com
The Mayor of Lorca, Francisco Jodar, received this morning to participants at the Sixth Congress of Rare Diseases during the day today are visiting the city.
The event was attended by the President of the National Federation of Rare Diseases, ERDF, Juan Carrion, and the President of the Association of D'Rare Disease Genes in neighboring Totana, Neca Pérez de Tudela.
The mayor has stated that "this municipality shares with you all the same goals. Because rare diseases are not minority schools. That is something we must never forget. Whatever type of disease has to be visible, regardless of their impact on the population. rare diseases No, there are people who suffer some ailments and that is enough to be valued and taken into consideration as any other. Lorca lives with joy your presence and with great pride.'s an honor to ye chosen to be part of this important meeting. "
Francisco Jodar noted, moreover, that we have to make visible any type of disease that affects people, because what you can not afford is never a person, in addition to suffering the disease, also suffer misunderstanding and strange look on part of a society on these issues has an absolute ignorance.
You have to know to understand, and understanding to help.
Why it is so important to the conclusion of a conference like this that is able to put on the first line currently an issue that should always have such prominence.
Let us work together to achieve the goals we have set and for diseases included under the common label of "weird" are increasingly known to the general public and also be a high priority for government and medical services.
Source: Ayuntamiento de Lorca
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