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In Murcia, it is estimated that there are about 4,000 people with Parkinson's, of which 10% have advanced stage disease
Lorca Association of Patients with Parkinson (ASLEP), in collaboration with the biopharmaceutical company Abbvie, celebrated on October 26 at 18.30 at the Centro Cultural de Lorca a briefing on the progress of Parkinson's and the treatments currently available, aimed at people with Parkinson's, family and caregivers.
During the day Dr. Emiliano Fernández Villalba, a neurologist at Hospital Morales Meseguer of Murcia, will give some tips on how to prepare the consultation with the neurologist to optimize each visit.
Meanwhile, Maria Garcia Ros, president of ASLEP, offer some guidelines for family and caregivers on how to live with Parkinson's affected.
Finally, Montserrat Mouriño, president of the Federation of People with Parkinson Murcia (FEPAMUR), will announce the important work ASLEP and the services it offers to improve the quality of life of those affected and their families.
"It is essential that patients and caregivers have the knowledge and skills needed to cope with this situation and improve, as far as possible, their quality of life tools. Therefore, through this conference we aim to bring to those affected by Parkinson's the region Parkinson's disease, evolution, main symptoms and treatments, "says Montserrat Mouriño, president of FEPAMUR.
Parkinson's is a chronic, degenerative and disabling neurological disorder that currently affects more than 150,000 families in Spain, and approximately 4,000 people in the region of Murcia, of which 10% have advanced disease state.
It is a complex pathology that a number of motor symptoms (slowness of movement, tremor, rigidity, postural instability) and non-motor (sleep disorders, constipation, eye problems, respiratory, urinary, cognitive or psychological problems).
As the disease progresses, these symptoms progress and can lead to serious difficulties in the daily life of those affected.
According to the study time, the symptoms begin to develop before age 45 in 15% of patients.
In the first five years of diagnosis, signs of the disease cause 42% require the help of a caregiver, and past ten years of diagnosis, the figure rises to 73% 1.
Because the symptoms can become very disabling proper control of them improve the quality of life and independence of patients.
In this regard, local associations of Parkinson's, as ASLEP play a key role in guiding and advising patients and their families, defend their rights and interests;
inform and raise awareness about Parkinson's disease, and promote prevention and research to develop new treatments.
In addition, they offer access to specific and complementary therapies to pharmacological rehabilitative treatment to suit the patient's needs in terms of the progression of the disease.
Specifically, among the services ASLEP offers hydrotherapy, cognitive stimulation workshops, physiotherapy, occupational therapy and speech therapy are included, plus a wide range of activities such as crafts, reading clubs, lectures and workshops to raise awareness about the disease Parkinson.
According to CASA study (costs associated with the services Associations of Parkinson) in Murcia more than 95% of associations taught speech and one physical therapy, therapies most used (namely 23% of the members attending physiotherapy and 19 a speech%), followed by occupational therapy and cognitive stimulation.
In total, these services involve associations of the region a weekly cost of 9,200 euros.
"In ASLEP work every day for people with Parkinson's receive from their immediate environment and society a personalized response directed to your specific situation to facilitate their continued active participation in the social fabric, that is, to remain active and socially integrated ", say from the Lorquina People with Parkinson Association (ASLEP).
Lorca Association of Patients with Parkinson (ASLEP) belongs to the Federation of People with Parkinson Murcia (FEPAMUR) and its main objective to ensure the welfare and improve care and the quality of life of people with Parkinson's.
Source: Agencias
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